Columnist Helen Baldwin says she learned this lesson when her third baby, Jeffrey, was born with SMA in the late 1990s.

SMA Europe is accepting proposals for research projects, with motor regeneration and SMA metabolism among the priority areas ...

Treatment with Zolgensma helped children with SMA gain or maintain motor milestones and motor function, a real-world study in ...

Restoring SNAP23 or replenishing these vesicles shows promise for improving bone health in SMA. Weak bones in people with ...

Omaveloxolone (approved for Friedreich's ataxia) may help protect cells from stress and correct underlying dysfunction in SMA ...

A study found Evrysdi (risdiplam) helps the body produce more SMN, and also revealed genetic differences between SMA types 2 and 3.

For guest writer Maria Llave, having consistent access to Medicaid provides peace of mind, enabling her to focus on her future.

Columnist Brianna Albers says that moving out of her long-time home with SMA has turned out to be her biggest gamble yet.

Spinal muscular atrophy (SMA) is an inherited neurodegenerative disorder characterized by progressive muscle weakness. SMA patients do not produce enough of a protein called survival motor neuron (SMN ...

Children with spinal muscular atrophy (SMA) given the gene therapy Zolgensma (onasemnogene abeparvovec-xioi) in infancy are maintaining motor milestones after up to a decade of follow-up, according to ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.

As 3-year-old Evie Bradford splashes in a shallow pool, her family cheers when she dog-paddles with all four limbs, her head bobbing above water. Less than a year ago, this little girl with spinal ...